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AlteringLifeSpectations

living with ALS

Publishing Delay

Posted on February 5, 2018February 5, 2018Categories Uncategorized

I had a very busy weekend and rather than hurry to write during the Super Bowl I will hold the presses and write a better blog.

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Exciting New Research

January blues, February hopes

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July 11, 2016 Living with Familial ALS
July 18, 2016 Diagnosis Day
July 25, 2016 What’s Most Important
August 1, 2016 #whatwouldyougive
August 8, 2016 Ales for ALS
August 15, 2016 Lots of love and connection with scary symptoms
August 22, 2016 Assistive Technology for Loss of Speech
August 29, 2016 Eating without tasting
September 5, 2016 Thinking about Life and Death
September 12, 2016 I’m terrific….other than a touch of ALS
September 19, 2016 A friend’s shared spiritual Journey
September 26, 2016 Ch-ch-ch-ch-Changes
October 3, 2016 Hospital to Hawaii
October 10, 2016 Hawaiian tiny bubbles
October 17, 2016 Mik-key button – now I can swim
October 24, 2016 Purple Rain
October 31, 2016 Love, Connection, and Hope in Boston
November 7, 2016 Cubs win the World Series and then it’s time for a change
November 14, 2016 Saying goodbye to a job I love
November 21, 2016 Central Nevada Weekend with Friends, and Meeting a Friend of over 16 year for the First Time
November 28, 2016 Thanksgiving love and connection
December 5, 2016 Christmas Eve – Sarajevo
December 12, 2016 Tough Love – Spousal Caregiving
December 19, 2016 Clinic visit and so much more in San Francisco
December 26, 2016 Family love and connection across Nevada
December 30, 2016 A little more Vegas, then an epic trip to South America begins
January 9, 2017 Galapagos to celebrate our 25th anniversary Part 1
January 16, 2017 Galapagos to celebrat our 25th anniversay Part 2
January 22, 2017 Galapagos to celebrate our 25th anniversary Part 3
January 30, 2017 What happens after an epic trip?
February 6, 2017 Meditations on Hope and life goes on
February 13, 2017 Balance, So Hard to Find
February 20, 2017 Galentines and Valentines all Tied up With a Bow
February 27, 2017 Range of Motion and the Range of Light
March 6, 2017 Clutter and Taxes and Time, oh my!
March 13, 2017 Music and Botox
March 20, 2017 March Madness
March 27, 2017 Mindfulness Based Stress Reduction
April 3, 2017 Surf’s up, our “grandson” is wonderful, Hawaii’s the life for me
April 10, 2017 Meet the ALS Family
April 17, 2017 Alphabet Soup (the last two weeks)
April 21, 2017 Over the mountains again and again
May 1, 2017 The Path of Life
May 8, 2017 Birthday Bash for Stan
May 15, 2017 Cinco de Mayo and Icky Camping and the Week that got Ickier
May 22, 2017 Hope, Love, and Connection and lots of good stuff
May 25, 2017 Cultivating Peace Within
June 4, 2017 Publishing delay this week
June 12, 2017 Beautiful Camping then the Best Laid Plans….
June 19, 2017 The Hard Part of Being Friends with PALS (People with ALS)
June 26, 2017 Traveling to some of my Happy Places
July 3, 2017 Milestones and Miles End
July 10, 2017 Central Nevada Fun and Not So Fun Fires
July 17, 2017 Thoughts during a non traveling week with no one in the hospital
July 24, 2017 The World I Know
July 31, 2017 A Week of Love, Connection, Connections, and Hope
August 14, 2017 ob la di, ob la da, life goes on
August 7, 2017 The Waiting Game
- August 18, 2017 Party, Progess and Plans
September 4, 2017 I’ve been out walking….I don’t do much talking these days
September 11, 2017 Family; and Frustration
August 28, 2017 Eclipse exceeded expectations in every way
September 16, 2017 Bobcat, Beach, Birthday, and Gram’s Grave
September 25, 2017 Trying to Reason with Allergy Season
October 2, 2017 My Aim is to Represent
October 9, 2017 What sort of beast is man?
October 16, 2017 Every picture tells a story, don’t it?
October 23, 2017 A Step Back in Time, then a Giant Leap Forward
October 30, 2017 Fun at Corey’s Crusade and Radicava Round 1, Days 1 through 10
November 6, 2017 Halloween and the end of first round of Radicava
November 13, 2107 Distraction vs Reality
November 20, 2017 Radicava Round Two, November and December travel
November 27, 2017 Thanksgiving in the U.S. – what I am thankful for
December 3, 2107 Publishing delay
December 4, 2017 Folsom Prison Blues
December 18, 2017 The Best Laid Plans (again)
January 1, 2018 Holidays, family and friends: love and connection
January 8, 2018 Island life and ALS
January 15, 2018 Background on my genetic mutation causing ALS – C9ORF72
January 22, 2018 the end of our Hawaii trip and back home to child proof
January 29, 2018 Exciting New Research
Febrary 5, 2018 Publishing Delay
February 7, 2018 January blues, February hopes
February 14, 2018 Loved ones visit from Hawaii and positive changes ensue
February 19,2018 Get On Board or Get Out of My Way

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July 11, 2016 Living with Familial ALS
July 18, 2016 Diagnosis Day
July 25, 2016 What’s Most Important
August 1, 2016 #whatwouldyougive
August 8, 2016 Ales for ALS
August 15, 2016 Lots of love and connection with scary symptoms
August 22, 2016 Assistive Technology for Loss of Speech
August 29, 2016 Eating without tasting
September 5, 2016 Thinking about Life and Death
September 12, 2016 I’m terrific….other than a touch of ALS
September 19, 2016 A friend’s shared spiritual Journey
September 26, 2016 Ch-ch-ch-ch-Changes
October 3, 2016 Hospital to Hawaii
October 10, 2016 Hawaiian tiny bubbles
October 17, 2016 Mik-key button – now I can swim
October 24, 2016 Purple Rain
October 31, 2016 Love, Connection, and Hope in Boston
November 7, 2016 Cubs win the World Series and then it’s time for a change
November 14, 2016 Saying goodbye to a job I love
November 21, 2016 Central Nevada Weekend with Friends, and Meeting a Friend of over 16 year for the First Time
November 28, 2016 Thanksgiving love and connection
December 5, 2016 Christmas Eve – Sarajevo
December 12, 2016 Tough Love – Spousal Caregiving
December 19, 2016 Clinic visit and so much more in San Francisco
December 26, 2016 Family love and connection across Nevada
December 30, 2016 A little more Vegas, then an epic trip to South America begins
January 9, 2017 Galapagos to celebrate our 25th anniversary Part 1
January 16, 2017 Galapagos to celebrat our 25th anniversay Part 2
January 22, 2017 Galapagos to celebrate our 25th anniversary Part 3
January 30, 2017 What happens after an epic trip?
February 6, 2017 Meditations on Hope and life goes on
February 13, 2017 Balance, So Hard to Find
February 20, 2017 Galentines and Valentines all Tied up With a Bow
February 27, 2017 Range of Motion and the Range of Light
March 6, 2017 Clutter and Taxes and Time, oh my!
March 13, 2017 Music and Botox
March 20, 2017 March Madness
March 27, 2017 Mindfulness Based Stress Reduction
April 3, 2017 Surf’s up, our “grandson” is wonderful, Hawaii’s the life for me
April 10, 2017 Meet the ALS Family
April 17, 2017 Alphabet Soup (the last two weeks)
April 21, 2017 Over the mountains again and again
May 1, 2017 The Path of Life
May 8, 2017 Birthday Bash for Stan
May 15, 2017 Cinco de Mayo and Icky Camping and the Week that got Ickier
May 22, 2017 Hope, Love, and Connection and lots of good stuff
May 25, 2017 Cultivating Peace Within
June 4, 2017 Publishing delay this week
June 12, 2017 Beautiful Camping then the Best Laid Plans….
June 19, 2017 The Hard Part of Being Friends with PALS (People with ALS)
June 26, 2017 Traveling to some of my Happy Places
July 3, 2017 Milestones and Miles End
July 10, 2017 Central Nevada Fun and Not So Fun Fires
July 17, 2017 Thoughts during a non traveling week with no one in the hospital
July 24, 2017 The World I Know
July 31, 2017 A Week of Love, Connection, Connections, and Hope
August 14, 2017 ob la di, ob la da, life goes on
August 7, 2017 The Waiting Game
September 4, 2017 I’ve been out walking….I don’t do much talking these days
September 11, 2017 Family; and Frustration
August 28, 2017 Eclipse exceeded expectations in every way
September 16, 2017 Bobcat, Beach, Birthday, and Gram’s Grave
September 25, 2017 Trying to Reason with Allergy Season
October 2, 2017 My Aim is to Represent
October 9, 2017 What sort of beast is man?
October 16, 2017 Every picture tells a story, don’t it?
October 23, 2017 A Step Back in Time, then a Giant Leap Forward
October 30, 2017 Fun at Corey’s Crusade and Radicava Round 1, Days 1 through 10
November 6, 2017 Halloween and the end of first round of Radicava
November 13, 2107 Distraction vs Reality
November 20, 2017 Radicava Round Two, November and December travel
November 27, 2017 Thanksgiving in the U.S. – what I am thankful for
December 3, 2107 Publishing delay
December 4, 2017 Folsom Prison Blues
December 18, 2017 The Best Laid Plans (again)
January 1, 2018 Holidays, family and friends: love and connection
January 8, 2018 Island life and ALS
January 15, 2018 Background on my genetic mutation causing ALS – C9ORF72
January 22, 2018 the end of our Hawaii trip and back home to child proof
January 29, 2018 Exciting New Research
Febrary 5, 2018 Publishing Delay
February 7, 2018 January blues, February hopes
February 14, 2018 Loved ones visit from Hawaii and positive changes ensue
February 19,2018 Get On Board or Get Out of My Way

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