Family; and Frustration

The title may be misleading, but the odd semicolon is intentional.  This week brought family visits which were wonderful. The frustration is my mouth.

First the family visits: My sister Sue is visiting from Houston for two weeks.

at Icecycle Creamery
When she saw the cattle horns made out of bicycle seats and handlebars, she had to do her hook ’em horns as a two time proud University of Texas mom.

We have had a lot of fun sharing old memories. She reminded me of things I had forgotten about – a game we made up on our front steps that we called Watercolors. One sibling would be the caller, and each stair had a color associated with it. When a color was called you had to jump to that stair. And when the top step’s color was called you had to get to the top first to be the next caller. And I reminded her about roller skating around our big furnace in the basement that had concrete floors and space around the whole furnace, so you could go around and swing off pipes and really get up speed.

We also had a visit this week from cousin Teddy and his gal Damaris. It was my step brother Brian’s birthday and Teddy’s had been the week before, so we celebrated both.

Cousins
Damaris and Stan
The whole family
My dad and Brian, the birthday boy, ordering
Brian’s birthday dessert with his mother Anita and Andy across the table

Sue is the one that did the ancestry.com research to find my dad’s half brother and half sister. For the past 6 years we have been blessed with wonderful additional family to love. Thank you Sue!

Teddy and Damaris with my step mom Anita

It was a great, but too short, visit.

Sue has enjoyed going to aqua fitness with me. And we spent some time at the Truckee River with her. 

skipping stones

One of the best things we did was to go through old photo albums.  There were lots of favorite pictures. Here are a few:

Our mom as a happy first time mom, our dad as a proud first time dad, with our brother, Tom
Our mom as a happy first time grandmother with baby Ellie

And Sue said that she was able to tell our Grandma Saunders that she was pregnant right before Grandma died, and Grandma clappped.

My brother Pete helping mom in the Hoyer lift on Halloween. I told Pete that he is too scary to ever be my caregiver. But this shows what a great caregiver he was for mom. He said they always tried to have fun.

And now I will tell you about my frustration. My latest Botox treatment on my saliva glands has left my mouth parched dry and uncomfortable. It is an inexact science of trial and error. I will have to wait for the Botox to wear off in about two months, and try various dry mouth products. I also still have irritated eyes and I was really hoping that discontinuing the Robinul (glycopyrrolate) would solve my irritated eyes too. The good thing about it is I don’t drool.

But these frustrations are minor compared to the anxiety felt by all the people in the path of hurricanes Harvey and Irma, and especially the ALS patients. I heard from one patient friend in Gainesville, Florida and he was worried about power outages for his external vent and cough assist machine. But then he heard from his advocate that he would be moved to a shelter with back up power. I also thought of the ALS patients thoughout the Carribean and Cuba, Florida, Alabama, Texas. To be unable to move yourself with storms like those bearing down would be higher anxiety than even my Xanax could help. I hope you all had help to be safe.